Reflecting back on a horrible month! this is 3 days after surgery
This was 2 weeks after surgery. We removed the stitches and had to adjust the pin since I kicked it further in to my foot.
I was doing a survey for NIH and at the end it had two links where you can go for help. One of them was for genetics testing - which so far this is not genetics. The other was for SWAN - Syndromes Without A Name. I went to their site and it's very cool. I immediately joined up and found them on Facebook so I could stay up to date.
Even though we have a diagnosis or whatever it is - I think this is a great place for us mom's to join and check out. After all - a syndrome is just a big group of symptoms.
Our doctors told us before - they don't care what everyone wants to call the syndrome - they can call it Haven's Syndrome if they want. The most important thing is to stop her from progressing and give her a long life.
They are the new Shape Ups from Skechers. They come with a DVD and book and all this crazy stuff. But like a man I did not read the directions or watch the DVD. I immediately put them on and did every errand I could think of - groceries, house cleaning, walmart, skipping......you get the idea. After about 4 hours my legs were dead! Last night I laid in bed in pain until finally falling asleep around 1:30am. I've had very bad insomniac issues lately.
I am wearing them again today but did take a minute to read the book. It says to start out at 30 minutes a day wearing them until you are used to them! No wonder my bad foot feels like it has a bruise on the outer bone. It also helps me realize I walk ridiculous....I always walk on the outside of my foot because my inside is broked! These shoes don't like that.
So all in all, I really really like them. They are extra squishy and I grow about 3 inches when I put them on! :)